If I say Kali is my little baby sister with an innocent loving heart, it would be a complete understatement. She has been taking many roles in my life, somtimes being a baby with unconditional love and innocent demands to a highly understanding matured individual with a unique personality.
By the time I was born she was already five and to her I was a doll with life. She not only assumed to have all rights on me but also took up the responsibility of caring me with utmost love, even before I was born. My mom always tells me that she would never drink her glass of milk unless my mom put a glass near her baby bump and assured her the baby (yay! that's me!) did.
When I was three years old and Though there was always a difference of five years that exited between us....we both were more like twins. We both went to the same school, we both sat beside each other and we both learned the alphabets and the numbers together. If there is any faint memory of my early childhood that would be me and Kali sitting beside each other and sharing our lunch boxes at school. She was my best friend and companion, I realized it then or not.
When I was about five, Kali was no more my classmate. I do not know if I ever asked my mom as to why she can't be studying with me anymore or not. She went to a different school and I went to the same old one.
A couple of years later, I realized how different we both were. We still played together but I got to dominate her all the time. She was more like a little sister to me now and she would obdeiently do whatever I asked her to. She was never a competetion and there was no sister rivalry between us. The relationship with Sru was totally a normal elder sis-younger sis relationship and the age differenece between us always kept our worlds apart. Sru could be the guide, caring sis ready to take the role of mom, friend rarely and of all, a role model to follow. But the relationship with Kali was different. She loved me too much and I took it for granted. She was different I thought or may be the 8-ish year old me could not realize that her mental growth was slower unlike most of us.
As we grow older....the commoness that once existed between us vanished. By my early teen years, I was used to explaining all of my friends and anyone new I met about what Downsyndrome was and is. Never for once did I feel irritatred or saddened to explain though I always wondered how IGNORANT people can be. Sru would tell me that if it was not for Kali in our lives, probably we could have belonged to the ignorant set of people too or most probably our knowledge of what Down syndrome would have been limited to the one or two lines we read in our General schooling. Which said not much except that it was Trisomy of Chromosome 21 or in simple words Kids with DS have an extra chromosome. That is, they have 47 chromosome instead of normal 46.
I took it as my responsibility to tell everyone how special that one extra chromosome meant. It is just not an extra chromosome that Kali had. She had more empathy, kindness and genuine love for anybody and everybody she ever met/meets. She could never hurt anyone. The only time I saw pure evilness in her was when she hit an already dead rat with a stick and expressed how relieved she was that it was dead, as she was scared of it wandering in our home since the last two days. Anger, love, want, need, pain, grief...or any other emotion she ever expressed they were always genuine.
By my mid teen years, I realized what an idiot I was to take Kali for granted. I always made sure to never hurt her ever again but to be frank there were a couple of instances when I was rude to her just because I was frustrated with something else. But never for once she was rude to me. Her love & care for me never changed but only evolved.When someone loves you unconditionally and never shows a hint of doubt on whether you have similar feelings towards them, you just can't help but love them the way they truly deserve.
As I grow older kali became a baby....a kid with maybe a mental age of 4-5 years sometimes, 8 years sometimes , and sometimes way beyond imaginable. Like most DS kids, Kali has a problem with her speech. Speech therapy, two-three decades ago was not so common in India. The speech that she is capable of now is all due to efforts of her never-give-up attidue. Almost everday she adds up a new word to her vocabulary and she always gets elated with her little victory. If she decides to accomplish something she does without any hesitation. She always finds a way to express her feelings or opinions. There are times when she can't and she would feel frustrated but then a little bit of patience from us and herself, she does find a way to express it.
Kali is also an all rounder and an eternal learner. She loves watching television and also loves learning from it. She has learnt more hindu mythology & culture, then I did by watching movies. Strangely, she has no language restrictions. She can watch a english/hindi/telugu and even tamil sometimes and totaly grasp what they are speaking. She is just a proof, that communication is done not just through words spoken. Oh, by the way she watched Air force One movie a couple of hundred times. She loves explaining me what each of the character looks like and does in that movie. She has an amazing memory too.
Kali is a techie too. Computers, mobile phones, games, Iphones, cameras and Ipads....She taught me more than I taught her. If I ever was too impatient to teach her something, she found a way to teach herself. As most DS kids would, she learnt from imitation or looking at others. Kali also has more medals and certificates then I do. She has attended a number of special schools for Kids with special needs. Kali realizes that she is different and we make sure she knows she is the most sweetest, most beautiful and most lovliest person on the planet.
Kali is idealistic too. Probably she never forgot the lessons of share-your-happiness-with-others, mom taught us as kids. She loves to share her chocolates, toys and anything she loves with her friends. The way to make her truly happy is not to buy a candy for her but for the 70-80 friends of her, at the Rehab institute.
Making Kali happy is what makes me and my family happy. Her wishes can be small like a new book/pen to going to a school in USA. A red car, a home with an elevator, visiting Delhi, visting USA etc are just a couple of wishes we were lucky enough to fulfill for her. But there are many more she wishes for. And I wish for only one thing, which is to make her wishes and wishes of people like her come true. No matter what I try to do for them , I can never match up to what they do for the world. They are the true propagators of humanity duely ignored by most of us.
sometimes one needs to see such unadulterated love to judge how restrained and maybe even selfish our love is!
ReplyDeleteHey Satan!!!
ReplyDeleteTrue!! And I am so glad to be the sister of someone who loves me unconditionally every single minute of the day!!